Ice Bucket Challenge pays off

Thursday, July 28, 2016

WASHINGTON – Funding generated from the ALS Ice Bucket Challenge, the 2014 viral video awareness campaign for ALS,has yielded new genetic findings. One million dollars of the $220 million dollars raised went towards Project MinE, a University of Massachusetts Medical School Project that was able to identify the NEK1 gene, providing another potential target for therapy development. NCART Executive Director Don Clayback accepted the ALS Association’s Ice Bucket in honor of National CRT Awareness Week that year. Gary Gilberti of Numotion, Doug Westerdahl of Monroe Wheelchair and Greg Packer of U.S. Rehab were among many HME providers across the country who participated in the challenge, which ultimately raised $220 million, according to the ALS Association.