Sleep portal seeks users
WASHINGTON – Web-based community portal MyApnea.org is recruiting patients, caregivers and those at risk for sleep apnea to share information, support and research about the disease. Initially, researchers will focus on questions and results that are most important, practical, and empowering to those impacted by sleep apnea. “By having large amounts of data provided by and for us, we can now drive the research agenda,” said Kathy Page, who has sleep apnea and is a member of MyApnea.org’s Patient Engagement Panel. “This is a way to democratize research—to generate understanding on the part of the researchers and patients together.” MyApnea.org is the public face of the Sleep Apnea Patient Centered Outcomes Network.