It won't be easy, but we're fighting for a principle
Once upon a time, a little girl named Judy was denied the right to attend grade school. School authorities considered her to be a fire hazard and turned her away. Her crime? She was confined to a wheelchair.
With the help of persistent and dedicated parents, the little girl got an education, eventually graduated from college and qualified to become a teacher. She was very bright, articulate and caring. But the Board of Education refused to grant her a license to teach school because she had the audacity to be confined to a wheelchair.
This is a true story. It did not happen in a far away land like Afghanistan or China. It happened right here in the United States, in New York City, in the 1950s and 1960s. The little girl's name was Judy Huemann, who by the way, grew up to be a productive and valuable member of society, earning a living and paying taxes. Her struggle ignited a passion to fight for the rights of people with disabilities and her efforts were instrumental in the creation of two landmark laws, the Individuals with Disabilities Education Act (1975) and the Americans with Disabilities Act (1990).
Our country's treatment of people with disabilities has come a long way since Judy was forced out of school. But a new, and indirect, attack is being waged on people with disabilities today. During the past three years, our elected officials in Washington, D.C., have passed laws that roll back some of the rights of people with disabilities. Soon, people like Judy won't have the right to choose who provides their wheelchair and, more importantly, who provides the fitting, assessment, adjustments and services that go with the chair.
Soon, people with respiratory disabilities won't be free to choose their oxygen provider and, worse, they will effectively lose their oxygen benefits under Medicare if they are fortunate enough to live more than 36 months on oxygen. Since my mother is in her 38th month on oxygen, that one really outrages me.
We need to recognize that HME providers and manufacturers do not have a viable constituency in our government. Anyone who thinks we are going to win an argument based on what is fair and just for business owners is living in a fairy tale. That approach has been a miserable failure.
Unlike physicians, hospitals and pharmaceutical companies, we don't have the money to win the argument via bankrolling congressional campaigns and engaging hoards of lobbyists. It's time to frame our arguments around protecting the rights of people with disabilities and the frail elderly. Competitive bidding eliminates choices for the disabled. Transferring ownership of complex medical equipment after an arbitrary timeframe burdens the disabled and the frail elderly. Corroding wheelchair coding downgrades the quality of life of people with disabilities.
HME providers and manufacturers help people with disabilities and the frail elderly live higher-quality lives. By attacking us, Congress is attacking people with disabilities and the frail elderly. Shame on us if we don't let America know what Congress is doing! Woe to us if we continue to frame the argument around our profitability or theoretical cost savings.
If you're bothering to read this, you are probably already involved in this fight. If not, you need to get involved. Jump in; the water's warm. Tell every one of your clients what Congress is doing. Tell their families, caregivers, your newspaper, your community. At VGM, we started Last Chance for Patient Choice to advocate aggressively for HME providers, manufacturers, people with disabilities and the frail elderly.
We oppose the two-tier healthcare system our elected leaders seek to create. We're using some new approaches to this fight that centered around telling people what their leaders are doing to them and welcoming them into the fight. We implore you to do the same, whether it's through Last Chance, AAHomecare, your state association or on your own.
Judy Huemann fought so she could attend school and then so she could teach school. Her fight wasn't easy; ours won't be either. But we're fighting for a principle.
Mike Mallaro is CFO and CIO of The VGM Group and president of Last Chance for Patient Choice.